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Showing posts with label Need for a cure. Show all posts
Showing posts with label Need for a cure. Show all posts

Thursday, May 14, 2009

Reality... I must be true to one of my Causes...

Excellent coverage, but there needs to be more! Lavender needs to be recognized as the cause color for Epilepsy with the same familiarity as pink is for Breast Cancer. The population challenged by "E" in this country alone is 3 million. Infants, children, women, men...

CURE President and founder Susan Axelrod and Special Olympics Chairman Tim Shriver were on MSNBC's "Morning Joe." Susan shared how she and CURE are working to increase awareness of Epilepsy, as well as research funding. Last night the sold-out 2nd Annual CURE New York City Benefit, at which Shriver was honored for his commitment to helping people with disabilities. "Morning Joe" hosts Joe Scarborough and Mika Brzezinski were special guests of the event.

Thursday, April 16, 2009

Newsweek on this stands this week!

No no! Not me, but it very well could be! So, including a photo of me to put my face on "E" once again. It will not be the last time, even when I receive a firm diagnosis. Whenever that will be, who knows? Yet, I'm continually working on Project Rewire.


Photo taken in Parkton, NC
on the track owned by the Red Springs & Northern Rail Road
I'm walking at a fast pace because I had a few more photos to snap
before heading to Red Springs to take my first Rail Car (Motor Car) ride, ever!
Very few shots will you glance of me outside without sunglasses on, ever!
It's been that way forever and forever it will remain. I am that light sensitive.



The Newsweek article below strikes un-really close to home for me. For my family members and loved ones who read my blog -- sorry guys, just keeping it real.

Please note for my un-net savvy readers...
The title is the direct link to the article. If anyone feels compelled to buy this week's Newsweek magazine, instead why not donate the money to CURE in my name. Every little bit helps! My sister recently made such a donation and there are simply no words to thank her enough.

In the Grip of the Unknown

It takes courage and discipline to live every day with the haunting uncertainty of epilepsy. A good doctor helps, too.