Project Rewire: Complex Partial Seizure...

Wednesday, March 18, 2009

Complex Partial Seizure...

Interesting... ESRA friend posted on Face Book... hits very close to home for me. Although, mine vary... the atypicalness makes me unique. Have memories from over my entire life going back to many things mentioned in this video, but sharing is simply for FYI purposes. Have many of the sensations the good doctor mentioned 24/7 although not obvious to those who don't know what to look out for. Horrible English... forgive me. No further narration needed. God Bless those who choose to watch...

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~ Newsweek Article to Increase Awareness for the Need to Find a CURE for Epilepsy ~

Living ...

In the Grip of the Unknown

I am stepping up my efforts a few notches and am contacting legislators to raise awareness in a unique way and other key people. Instead of simply writing a typical email to them, I'm including a link to my blog with a mention of the above article... believing out of sheer curiosity it will be clicked upon.

Why am I including the link to my blog? Because I'm considered "atypical" and so far I'm still living with uncontrolled seizures. I've "failed" several medications. And, the Rx I'm on, isn't getting it. All it does is help me to keep my words flowing more smoothly. This is the short version. For the long variety, click into label... Jeanne Holland Newton for a more detailed version of my story over time... the path God set before me as I journey to healing.

I appeal to everyone to do all a person can to create awareness with our legislators nationwide so a CURE for Epilepsy can finally be found.

My Personal Missions -- My Goals

~ To know Him and make Him known
~ To promote English Springer Spaniel Rescue America
~ To put an end to puppy mills
~ To promote Citizens United to Find a Cure for Epilepsy
~ To live at my beach again
~ To visit Seattle again and share it with my husband
~ To create and keep good memories close at hand
~ To encourage & support my loved ones as best I can, as well as others God puts on my path
~ To support a variety of missions & charitable causes
~ To drive again soon without it being medically risky
~ To one day earn a living again & make so much money I can easily give half way & still live comfortably
~ To show off some of the seen and unseen beauty of Richmond, County NC and whereever my travels take me
~ To be healed & be independent again so my husband's time will be more available for himself, to do things he enjoys
~ To be there when needed
~ To add a much needed face on Epilepsy & Seizure Disorders, admittedly, reluctantly

White with Lavender Crape Myrtle

The white blossoms remind me of French Lace and my Grandmother... while the Lavender uniquely accentuates the tree's beauty in its entirety... A special Gift from Above... I'd ordered an all Lavender Crape... such an unexpected an incredible treat to discover it was grafted... I didn't know I had Epilepsy then... nor that Lavender was the awareness color for the disease. But, with God on my side... living in me... I've been grafted into the Body of Christ. Sickness nor disease will win over me! The teeny tiny date appears for a reason.

Sometimes I write tons and sometimes I don't...

I write when I'm trying to get back to myself... and to keep my words flowing since I truly lost them for a good while. It was toughly living without them. Yet, they were just inside my brain hiding or stuck in between frayed wires... making new pathways to free themselves. So, writing is not only a love of mine, it's literally a cool rehab tool.

I write when things are a bit hectic to calm me.

I write even during times I'm seizing since seizing actually fires up my creative side -- it's the fun part of this interesting stuff I have...

And I write when I'm exceedingly happy and joyful, too!

Sometimes I write deliberately LONG entries, to tax my brain -- stretch it, because actually spending time looking at a computer screen can trigger things for me.

Yet, I'm keeping it easy, too -- for myself -- and for my readers. Although, I'm wordy at times... wax poetic and phoetic, it's an easy read. The blog archives, however, it's set so anyone can scroll from the top all the way to the beginning. Easily. I do that because I have some readers who are in the midst of healing from serious illness, and others whose hands don't work so well, or have minds of their own, kind of like my right hand does. So, there's no huge amount of digging involved. It's simple... simple.

I've also set up labels, as most bloggers do to help one click through straight to entries which may be more meaningful than other entries.

But those who hope in the Lord...

will renew their strength.
They will soar on wings like eagles;
they will run and not grow weary,
they will walk and not be faint
Isaiah 40:31

When I first started this blog, I mistakenly thought it was simply about my journey to healing. That it was simply my story. But, over time I've realized it's not just my story and I've come full circle.

Maybe God is building your testimony... your story... as He is mine.

Whether your story has to do with Epilepsy, Seizure or Neurological Disorders... Cancer, Diabetes, Substance Abuse, etc. Or, you're experiencing a tough time.

Whether you're a Christian or not... it does not matter. You're welcome to share your story here and can do so by commenting "anonymously" to my blog posts, or directly to this link.

To keep this a safe haven, however... I will moderate the comments and stories you share.

Note regarding my photographic slide shows...

Little special note to my family and loved ones......... 4-7-09

even to passer bys who many not get it...

The ones who believe I'm focused on "the" condition... I'm not! Yet, I am having to live with it. Not a path I'd choose, but it's the one I'm on, as such...

I'm focused on healing, recovering "stuff" I've lost and rehabing... trying my best with God's help to lead a normal life... even beyond normal... to extravagantly exciting. Now and in the future!

At the moment, it's not wise for me to drive, nor do much of anything beyond the confines of my yard alone -- since I don't have any discernable warning signals. Nor, am I aware of most of my triggers, so it's better I use wisdom. Do I miss my independency. Extremely!!

So, please pray for me. Please join Citizens United for Research In Epilepsy and don't worry! Much is about sensitivity, perspective and respect. All the rest is via God's Grace. It abounds! To give you a better understand of what it is like to be me, this is an excellent piece should any of you feel led to read it ---> Newsweek article.

"E" is an extremely complicated condition as is anything having to do with one's brain. Being atypically special makes it challenging, and certainly keeps things interesting.

Also, keep in mind that many of the words I use on this blog are directed towards others living with similar challenges. There is such a stigma to "E" many hide it. And, I don't judge them for even a sec. My hopes and prayers is that by my being mouthy about it, and sharing my life a bit... and my photos, other's will step out in faith, too. Yet, for those who can't, they will know there are others on the planet who understand. Who have similar stories and talents. That there are ways they can help themselves.

Copyright Notice...

© Jeanne Holland Newton, © sjeanne and Project Rewire 2008 - 2011. Unauthorized use and/or duplication of written material and photographs without express and written permission from me as this blog’s author and owner is strictly prohibited. Feel free to use excerpts and links, provided that full and clear credit is given to Jeanne Holland Newton, sjeanne and Project Rewire with appropriate and specific direction to the original content. Any questions, please email me @ ppcjeanne@aol.com. Thank you!

Key page to help you connect the dots...

Wednesday, March 18, 2009

Complex Partial Seizure...

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Still feels like home...

Some views never change...

My rocks at Chesapeake Beach....

A note about previous blog entries...

I keep the background of Project Rewire very simple...

Project Rewire's most recent back links to catch you up to 'now'...

Search This Blog

Birds of a feather...

Snowy cat weathervane sits

Sydney & Roxy...

Little Christmas Tree...

Riverbirch covered blissfully...

Funny how God will even use a Pink Croc!

Back to back Autumn Days in Historic Rockingham - 2008

Gingko tree Autumn finery...

Gingko leaves covered the ground...

What a difference a single day can make...

Evergreen vs. a soon to be leafless tree...

~ Newsweek Article to Increase Awareness for the Need to Find a CURE for Epilepsy ~

Forgiveness...

God's palette in the dusk skies over my house...

My Personal Missions -- My Goals

I see beauty in the imperfections.........

Stained lavender glass of an old building. broken & shattered in places, yet still lovely...

Sweet Tree Silohette...

Angel Power.........

A double promise...

A double blessing...

Late Day Moon Over the Lamp Post

Daylilies Against the Rugged Bark of a Double Tree Trunk

Stand Tall Vivid Green Tree

White with Lavender Crape Myrtle

Unlikely Pairings, Uncommon Partnerhsips, A Unique Reflection of My Life

My Miracle Puppy, Miss Sydney Springer

Spring blossoms so sweet, they mask the not quite right area far off in the distance...

Sometimes I write tons and sometimes I don't...

But those who hope in the Lord...

Tall pine reaching for the promise...

Mountain Laurel trying to hide behind a tree.........

Deeply rooted tree in an ancient forest in Richmond County, NC

Note regarding my photographic slide shows...

Quicky subscription...

Totally Brain, Epilepsy and Seizure related links and articles I am passionate about!

Meaningful links to me... extremely so... so much I pray you'll feel led to pass them on!

Glorious Trestle Across the Pee Dee River

Old Power Pole amidst the Kudzu

Flying high above Richmond County

Remember always...

Our Beautiful Powered Parachute Ultralight

Little special note to my family and loved ones......... 4-7-09

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